Hi! I was just looking at your site. David is a cutie pie. This question is not to offend you, but have you ever looked at CMTC, or M-CMTC. My 2yr old Daughter has M-CMTC. Most of our children were diagnosed with KTW first and then re-dx'd later. Port Wine stains stay very dark like Sturge Webber their entire life, but David's skin looks like mottling. Does it fade when he's warm and become more prominent when he's cold or mad? Check out our website, www.macrocephaly-cmtc.com. You have to click on "Enter Site" I also have a blog; barhambunch.blogspot.com if you go back in my archives to Sept 2005 I have pics of Eva when she was born. Take care - Callista
Hi just wanted to say hello I have a daughter Grace who is 5 also with RT side Hemi loved the website very cute and has alot of info good for friends and family that don't know what alot of this means!! Hope this message finds you all doing well Stephanie
Hi Amber, Jeff, David, and Hannah! I love your website! Very cute and creative! (and a great way to get the message out!) I hope you all are doing well, as it has been quite some time since we have gotten together...
You did a WONDERFUL job on this site!!! WOW I really enjoyed catching up with you today! Hopefully I will be able to come visit sometime soon. You and Jeff have two BEAutiful children. You guys are extremely blessed.
Just always remember GOD will NEVER give you more than you can handle. Although, sometimes a break would be nice.
Be strong and if you need anything just let me know.
Hey David... & Amber, Jeff and Hannah too!!! First, let me say that living right next door has been wonderful!!! Next, I am so glad that I have been able to watch you grow - you are an amazing little boy!!! I am blessed to have you all in my life and happy to call your Mom & Dad my friends... Love to all of you and I will be watching the site... Always & Forever... Ms. Mary
Hey David and Amber, What an amazing and brave little boy! The web site is awsome and very informative and you did a wonderful job with it. With God's help and such an supportive and loving family how could you not succeed! It was great hearing from you Amber and thanks for the update. Take care, Bonnie
Amber, you did an incredible job on the site! David has a fantastic cheerleading squad behind him, that's for sure. I will continue to check for updates and some more cute pictures. Can't wait to see you guys, it's been forever...
Hi David Dink Dinks! Your mommy did a wonderful job on your website! It looks great! I hope you are feeling better after your fever. Hope to see you soon!