David Jeffery Seveland
Attacking all obstacles with a strong mind and heart.
Blog
Relieved and Destressing
Posted by David Seveland
at 12:25 AM on February 27, 2008
|
Sorry it has been so long since I have written. I was stressing really bad for a little while there. I just wanted to let everyone know what has gone on in our last 5 weeks. I has been very stressful. As you all know David was having some tests run to try and identify the cause of his fever and swollen gland. Well in addition to the tests I have previously mentioned he was also tested for Leukemia. Yeah that one was scary. Well good news. All the tests have come out negative or normal. We are really excited about that. He was also tested for Cystic Fibrosis and that came out normal as well. He isn't even a carrier. The only one that showed an abnormality was his quarterly AFP test. This is his tumor marker and it came out slightly elevated. Normally there would be no concern with this but his has been getting consecutively higher over the last 3 tests (6 months). So there is a little concern. We had a retest after 2 weeks.
Since everything came back normal we were sent to an ENT to see what he thought was causing the gland to swell up. He said it could possibly be an infection that caused it and in that case it wouldn't go down for 2-3 months. Well he wanted us to do the retest of the AFP and how that came back would determine our next step. In the process of waiting to get the retest done he calls us and tells us that it is possible David has a Neuroblastoma (a different form of cancer). Yeah that makes 2 different cancers in 3 weeks.
Well the retest came back within the normal range. Huge relief. The ENT decided he wants to wait 6-8 weeks from the retest and if the gland in his neck doesn't go down any then he is going to remove it and send it off to get it tested to make sure it isn't cancer.
So now we wait. In the meantime his fever has come back and we are trying to get an MRI ordered to check his Spine (for possible scoliosis), his abdomen (to replace his quarterly Ultrasound and check for tumors or abnormalities), and of his legs (to check for any venous malformations common with KTS). Personally I think they should just do a Full body MRI and get it over with. HAHA.
But we are in the waiting game to hear when that will be. We also go in Friday for David's 18 month check-up. I will let you guys know how big the little man is later.
Oh, on a good note. David has started to put 2-3 signs together in small sentences. He asked for "more cheese please" today. All on his own. We weren't even eating cheese. Needless to say I gave him some.
Since everything came back normal we were sent to an ENT to see what he thought was causing the gland to swell up. He said it could possibly be an infection that caused it and in that case it wouldn't go down for 2-3 months. Well he wanted us to do the retest of the AFP and how that came back would determine our next step. In the process of waiting to get the retest done he calls us and tells us that it is possible David has a Neuroblastoma (a different form of cancer). Yeah that makes 2 different cancers in 3 weeks.
Well the retest came back within the normal range. Huge relief. The ENT decided he wants to wait 6-8 weeks from the retest and if the gland in his neck doesn't go down any then he is going to remove it and send it off to get it tested to make sure it isn't cancer.
So now we wait. In the meantime his fever has come back and we are trying to get an MRI ordered to check his Spine (for possible scoliosis), his abdomen (to replace his quarterly Ultrasound and check for tumors or abnormalities), and of his legs (to check for any venous malformations common with KTS). Personally I think they should just do a Full body MRI and get it over with. HAHA.
But we are in the waiting game to hear when that will be. We also go in Friday for David's 18 month check-up. I will let you guys know how big the little man is later.
Oh, on a good note. David has started to put 2-3 signs together in small sentences. He asked for "more cheese please" today. All on his own. We weren't even eating cheese. Needless to say I gave him some.
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